Programme:

 09.30-10.00 Prof. Alain Verloes, ERN Ithaca coordinator, L’hôpital Robert-Debré, Paris, France. Experience of ERN Ithaca work at EU level.

 10.00-10.20 Dr. Merike Luman, The North Estonia Medical Centre. Experience of ERKNet collaboration at the Healthcare Provider level.

 10.20-10.50 Heli Paluste, Ministry of Social Affairs, Estonia. The support and coordination of ERNs activity on national level.

 10.50-11.20 Prof. Joel Starkopf, Tartu University Hospital. The research activity and ERN support at Tartu University Hospital.

 11.20-11.50 Prof. Katrin Õunap, Tartu University Hospital.The activity of the Competence Center of Rare Diseases and ERNs in Estonia.

 11.50-12.00 Discussion

12.00-12.45 Lunch 

12.45-13.15 Dr. Kristi Tael, Tartu University Hospital. The implementation of rare diseases registry and Orpha codes at Tartu University Hospital. 

13.15-13.35 Ass. Prof. Tiina Kahre, Tartu University Hospital. Experience of ERN-Genturis collaboration at the Healthcare Provider level.

13.35-14.00 Dr. Raili Tagen, Tartu University Hospital. The Competence Center of congenital heart defects. Experience of ERN GUARD HEART collaboration at the Health Care Provider level.

14.00-14.20 Dr. Kristel Harak, Tallinn East Central Hospital. Experience of ERN-EYE collaboration at the Healthcare Provider level.

14.20-14.40 Ass. Prof. Liis Väli, Tartu University Hospital. Experience of ERN EURO-NMD collaboration at the Healtcare Provider level.

14.40-15.00 Prof. Vallo Tillmann, Tartu University Hospital. Experience of ENDO ERN collaboration at the Healtcare Provider level.

15.00-15.10 Conclusions